Heart failure patient group leaders from 17 countries around the world participated in a two-day Heart Failure Patient Organisation Capacity Building Academy, organised by Croí and supported by Novartis, where they had the opportunity to network and discuss issues affecting those living with heart failure.
Approximately 90,000 people live with heart failure in Ireland, with 10,000 new cases diagnosed each year.
The 2017 Academy marked the establishment of a new European Network of Heart Failure Patient Organisations and the European branch of the International Heart Hub (iHHub).
Speaking at the Academy Neil Johnson, Chief Executive, Croí said, “One in five people can expect to develop heart failure in their lifetime and it is a leading cause of hospitalisation and high admission and re-admission rates here in Ireland. Yet, awareness is low and person-centred approaches to care are not being adopted.
“By hosting this global network, we want to learn how to prioritise heart failure on the national policy agenda, share experiences and discuss common challenges for patients and their carers. We hope the establishment of the European Network of Heart Failure Patient Organisations will help us prioritise heart failure at a European and at a national level”.
Despite the strides being made by the Heart Failure Academy, one in three people admitted to hospital with heart failure in Ireland will die within one year.
The third annual Heart Failure Academy took place earlier this month at the Croí Heart and Stroke Centre in Galway.